提高IF患者的生活质量.pdf

1、Enhancing Quality of Life in the Intestinal Failure PatientMarion Winkler,PhD,RD,LDN,CNSCProfessor of Surgery,Alpert Medical School of Brown UniversitySurgical Nutrition Specialist,Department of Surgery and Nutritional Support Service at Rhode Island HospitalMaria Karimbakas,RD,CNSCOptum Intestinal

2、Rehab Program ManagerFinancial DisclosuresMarion Winkler Takeda Pharmaceuticals,Nutrition Consultant VectivBio,Nutrition ConsultantMaria Karimbakas Optum Infusion Pharmacy,Employee VectivBio,Patient Leadership CouncilLearning Objectives1st Learning Objective:To understand the factors that impact the

3、 IF consumers quality of life2nd Learning Objective:To discuss modifications in parenteral support to enhance quality of life3rd Learning Objective:To review consumer-based actions to improve quality of lifeQoL Practical ApplicationsInfusions and QoLInfusion Hook-up Time-did you choose it?Time of Da

4、y of infusion-daytime vs.overnight?Infusion Hours-can it be any shorter?Number of days-has any weaning been discussed?Independence-ability to connect/disconnect infusions on your own?Mobility-are you using a pump and backpack with your infusions?Hydration-compounded vs.shelf-stable?Lab frequency-par

5、ameters for reducing?Medications and QoLDo you know the condition/symptom that each oral and IV medication has been prescribed for?Has the maximal dose been prescribed(i.e.anti-diarrheals)?Are there medications you are struggling to take(i.e.due to pill size,taste,side effect,cost)?Have you been ins

6、tructed on the most ideal time to take medication/supplements and those that need to be separated to avoid interactions?IV Medications-are pre-filled syringes an option and can any be added by pharmacy?Diet and QoLHave you been instructed on the most appropriate food and beverage