益普索（Ipsos）：2024欧洲罕见病洞察报告：认知水平、诊疗现状及社会期望（中译版）（18页）.pdf

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1、Ipsos The European Rare Diseases Observatory 2024THE EUROPEAN THE EUROPEAN RARE DISEASES RARE DISEASES OBSERVATORYOBSERVATORYThird wave-2024Ipsos The European Rare Diseases Observatory 20242 2 METHODOLOGYMETHODOLOGYSample surveyed online via Ipsos Online Access Panel.Quota method:Gender,age,occupati

2、on of the respondent,market size and regionSAMPLEFIELD DATESMETHOD11,413 Europeans aged 16 and overFrom February 19 to March 19,2024.NB/the previous survey was carried out from 5 to 31 March 2022.Number of respondentsTotal11,413France2,413Germany1,000Spain1,000Great Britain1,000Italy1,000Sweden1,000

3、Greece1,000Poland1,000Netherlands1,000Ipsos The European Rare Diseases Observatory 20241 1-RARE DISEASES RARE DISEASES CONCERN MANY EUROPEANS CONCERN MANY EUROPEANS The level of knowledge of Europeans about rare diseases is increasing slightly1 in 25 Europeans say they have a rare diseaseAlmost 1 in

4、 3 suffers directly or indirectly from itIpsos The European Rare Diseases Observatory 2024YES,I KNOW EXACTLY WHAT ITMEANSYES,I KNOW ROUGHLY WHAT ITMEANSNO,I DONT KNOW WHAT IT MEANSNO,I HAD NEVER HEARD OFTHIS TERMONLY A LITTLE MORE THAN 1 IN 4 EUROPEANS KNOW PRECISELY WHAT A RONLY A LITTLE MORE THAN

5、1 IN 4 EUROPEANS KNOW PRECISELY WHAT A RARE DISEASE IS:ARE DISEASE IS:KNOWLEDGE IS INCREASING SLIGHTLY.KNOWLEDGE IS INCREASING SLIGHTLY.Do you know what is meant by the term rare disease?Base:Europeans,n=114132854117%Y%YESES 82824 478%89%69%94%90%85%86%79%73%82%Know what it means%Know what it means2

6、022:79%Ipsos The European Rare Diseases Observatory 20245 5A rare disease is a disease that affects fewer than 5 in 10,000 people.About 80%of them have a genetic cause.Within the European Union,about 30 million citizens are affected by more than 6,000 different rare diseases.These include,for exampl