利用远程医疗扩大镰状细胞病的护理.pdf

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1、Removing barriers to care:Telehealth and Sickle Cell DiseaseDaniel Landau,MDMUSC department of TelehealthA common and commonly misunderstood conditionMutation develops from a substitution of valine glutamic acid in the beta globin chain What is the function of red blood cells?How long do they typica

2、lly survive?The“sickled”cell has half the life span of a non sickled red blood cell(hemolysis)Sickled cells clump together and block blood flow to tissue and organs Variations of the disease Sickle C disease Sickle Thalassemia Sickle Trait MoreHow to separate out different types100,000+in the US20 m

3、illion+worldwide1/13 African American births have trait1/365 African American births have disease In the US,the African American population is the most commonly affected but sickle cell disease can be seen across many different ethnicitiesLife span is 20 years shorter than the general population Eve

4、ry organ system is impacted by this disease Neurologic Ocular Heart Lungs Spleen Blood vessels Kidneys Muscles Joints10%+of children with sickle cell disease have stroke Life time implications Missed days of school,work,lower self esteemHeart failure and pulmonary hypertension are common complicatio

5、ns Ultimately are common reasons for mortalitySpleens undergo necrosis increasing risk of infections Director of Legislation to the House Ways and Means Committee/South Carolina House of Representatives Double majored in Political Science and History at Furman University in Greenville,SC and would g

6、o on to serve as Director of the director of legislation for the South Carolina House Ways and Means Committee.Rena played a pivotal role in raising awareness and advocating for better health care resources,support services and public understanding of SCD at the state level,leading to significant im