解锁大数据以探索南卡罗来纳州特殊人群的障碍.pdf

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1、BARRIERS TO UNLOCKING BIG DATA TO EXPLORE LGBTQ+POPULATIONS IN SOUTH CAROLINAJennifer T.May,PhD,RN,ANP-BCSwann Arp Adams,PhDBACKGROUND&SIGNIFICANCELGBTQ+Data Collection2015-CMS promoting interoperability programLack of data limits the ability to provide LGBTQ+adults the care they need3Lesbian,Gay,Bi

2、sexual,Transgender,Queer(LGBTQ+)Currently,13.9 million adults identify as LGBT1More LGBT adults live in the South than any other region180%experienced discrimination or victimization2AIM To assess the availability of data on LGBTQ+adults(18 years)in South Carolina using the South Carolina Integrated

3、 Data System(SCIDS)80%experienced discrimination or victimizationMETHODS Sequential mixed methods Key informant interviews with Data Integration and Analysis Division at SC Revenue and Fiscal Affairs Office Descriptive data analysis 2000 to 2022 data for adults(18 years)with specific transgender ICD

4、-9,ICD-10 codes,and DSM-5 codesSCIDSSOURCES EXPLOREDRESULTS SCIDS Informant Interviews SOGI data not available from state agencies and organizations in the SCIDS Transgender adults explored with specific codes:ICD-9,ICD-10,DSM-5Key Takeaway:SOGI data is not available from state agencies in the SCIDW

5、TRANSGENDER CODES EXPLOREDICD-9ICD-10DSM-5302.50(Transsexualism with unspecified sexual history)F64.0 Transsexualism/Transgender in adolescence and adulthood302.85 Gender dysphoria in adolescents and adults302.51(Transsexualism with asexual history)F64.9 Dysphoria,gender(gender incongruence)302.52(T

6、ranssexualism with homosexual history)F64.2 Gender identity disorder of childhood302.53(Transsexualism with heterosexual history)Z87.890 Personal history of sex reassignment302.85(GID in adolescents or adults)RESULTSSCIDS Agencies ExploredTransgender Patients*Alcohol and Drug Abuse Services*0SC Dept