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F8:我们对有生活经验的人士和社区参与国际论坛有何愿景?.pdf

上传人: 彩旗 编号:1158810 2026-03-02 13页 498.09KB

1、Emma Doble,Jean Straus,Sandra Jayacodi,Katrine Kirk,Gabby Matthews and Emma TonnerThe future of patient and public/lived experience involvement at the forum Todays agenda01040302What have we done so farGroup discussionsFeedback Where do we go from here 2016-Gothenburg Two patient advocates joined th

2、e International Programme Two patient advocates join the programme planning committee2017-London Two patient advocates part of the International Programme committee Two patient advocates part of the programme planning committee Introduced invitation for all presenters to bring along a patient co-pre

3、senter for free.5 patients presented in keynote stage sessions(biggest main stage presence to date).Complimentary places provided for carers who need to support patient attendees.2 patient presented sessions included on the agendaHistory:what we have done so far History:What we have done so far 2018

4、-Amsterdam Introduced open application form for patients to attend free of charge Reviewers of submitted abstracts instructed to only award top scores to work which demonstrates clear evidence of some elements of co production with patients and the public.Two patient advocates part of the Internatio

5、nal Programme committee Two patient advocates part of the programme planning committee Invitation for all presenters to bring along a patient co-presenter with a complimentary pass Complimentary places provided for carers who need to support patient attendees.2019-Glasgow Introduced fully funded app

6、lication process for patients to attend the event(complimentary pass plus travel and accommodation).18 patients attend the event(8 delegates,10 speakers)Worked with a local patient stakeholder group which advised on local patient-led projects and advocates to include Key messages from meeting spread

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1. **患者参与历程**:自2016年哥德堡论坛起,逐步推进患者/公众参与,包括加入国际项目委员会、规划委员会,2019年格拉斯哥首次提供患者全额资助(18人参会),2022年哥德堡首次设立患者展台及患者选择奖。 2. **核心举措**: - 每年邀请患者共同主持(免费通行证); - 患者审稿人参与摘要评审; - 患者主导演讲/工作坊; - 2023年起为演讲者提供患者共创指南。 3. **2025年乌得勒支进展**:推出“生活经验社区校友计划”,患者提供指导视频及 mentoring,延续全额资助、患者展台等机制。 4. **未来规划**:2026年奥斯陆论坛患者参与申请已开放(6月6日截止),正制定“生活经验参与策略”。
**如何参与?** **有何新举措?** **为何重要?**
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